On completion of the study, any remaining donated samples will be transferred to the care of the Newcastle Biobank. The samples are stored in a secure room in Newcastle University as part of the Newcastle Biobank. The samples will be anonymised and any information regarding your identity will be removed. Only trained staff will have access to the samples. Organoid samples will also be kept and used for future research at the Wellcome Sanger Institute following completion of the study.

Samples within the Newcastle Biobank or the Wellcome Sanger Institute will mostly be used by research teams in the UK. In some cases, researchers located overseas, for example in Europe and the USA, may wish to use these samples. As described above, researchers from other countries will need to have ethical approval in their own countries which are comparable to those in the UK. They will also need to sign a legal agreement which says that they must follow the rules on how the samples are used and disposed of and how they will handle the information. This is to ensure all samples are treated appropriately and to ensure the standards are equal to that in the UK.  

The samples may be used by commercial partners. Any benefits from these will be used to directly improve patient care or enable us to conduct further research. Under UK law, sample donors are not entitled to a share of any profits which may result from this activity. Samples collected from this study will not be used for any animal testing or animal research.